Participant in Research Experience Survey (PRES)

Participant in Research Experience Survey (PRES)

About PRES

Every year, the NIHR asks thousands of people who volunteered for health research to give feedback so we can make improvements, where needed, to improve participant experience.

We agree individual targets with each partner organisation based on recruitment. We are asking for your support in inviting as many people as possible to complete the PRES.

Delivering PRES

PRES is for people who are currently taking part in a Clinical Research Network Portfolio study (including commercial studies) and are at a point in the study where they feel they can give their views. They don’t need to wait until the end of their study to complete the survey.

You can deliver the PRES in the way that suits your study and its participants – there are online and print versions, and versions for different age groups.

Online

Experience shows us the method that gets the highest response rate is sending the survey via email or SMS to study participants at an appropriate point during their research journey.

Online survey links

Template email or SMS

The template below is an example of a message inviting research participants to complete PRES. It can be adapted to suit the needs of individual studies.

Template message inviting research participants to complete PRES

Dear [PARTICIPANT NAME],

Thank you for taking part in the [STUDY NAME] study at [SITE NAME].

We are inviting you to complete a short survey about your experience of taking part in this study.

You are being asked to complete this survey because you have previously or are currently taking part in research supported by the National Institute for Health and Care Research (NIHR), which funds and supports research in the NHS as well as public health and social care research.

Part of the role of the NIHR is to make research better so that people like you who take part have the best experience possible. We would value your feedback in this survey to help us do this.

Taking part in the survey is voluntary, you do not have to fill this form in. It generally takes up to five minutes to complete. Your answers will be used anonymously to help improve research.

[INSERT LINK]

Kind regards,
[PI, STUDY NAME]

Other ways to promote the online version

Materials including business cards and posters with QR codes are available. Please get in touch to discuss the best way to deliver PRES at your site: ppie.crnnwl@nihr.ac.uk

Paper versions

Participants can complete a paper version of PRES if they prefer. The study team will need to add the location, study name, and CPSM or IRAS number in the designated spot on the front page. These can then be sent to us when you have a batch. Please get in touch to arrange delivery or collection: ppie.crnnwl@nihr.ac.uk.

Surveys that can’t be linked to a specific study aren’t counted towards your target. Please make sure to complete the ‘for staff use’ box in advance.

Paper surveys for printing

Local targets in North West London for 2022/23

We agree targets for PRES with our partners. Please get in touch if you have any questions or concerns about your organisation’s target.

Partner organisationTarget
Central and North West London NHS Foundation Trust50
Central London Community Healthcare NHS Trust8
Chelsea and Westminster Hospital NHS Foundation Trust200
The Hillingdon Hospitals NHS Foundation Trust14
Imperial College Healthcare NHS Trust450
London North West University Healthcare NHS Trust325
Non-NHS activity15
Primary care settings700
West London NHS Trust50
Total1812

Exempt studies and ethical guidance

Exempt studies

The PRES will not be suitable for some studies and participants. Studies that are exempt include those where there are concerns over the capacity of the participant to take part in PRES, where studies are a bi-product of a procedure (tissue sampling), or in situations where it is not appropriate to approach a participant e.g. trauma or grief.

Ethical guidance

After consultation with the NHS Health Research Authority (HRA) in 2019, it was confirmed that PRES is not research and does NOT require NHS approval before being conducted within health and social care settings. The HRA advises that the results obtained from their online decision-making tools can be taken as authoritative.

These results are in line with the harmonised UK-wide edition of the Governance Arrangements for Research Ethics Committees (GAfREC) 2018; the UK Policy Framework for Health and Social Care Research (2017) and the National Research Ethics Service (NRES) Defining Research table and algorithm ‘Does my project require review by a Research Ethics Committee?’.

PRES Results Dashboards

You can see the latest results for your study on the North West London PRES Results Dashboard for 2022/23. At the top of the dashboard you will see several options to help you filter by year, study, speciality and site.

Dashboards from previous years

Get in touch

We are here to support the delivery of PRES. Please do get in touch with any questions or concerns: ppie.crnnwl@nihr.ac.uk.